Long Covid: Teen on 10 month journey to recovery



There is still too little known about long Covid and particularly how it affects children.

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But this programme can reveal that half the patients at a new clinic for those with the severest form of the illness had already been diagnosed as being on the autistic spectrum, a surprise finding that has led to calls for more – and urgent research.

And even for those not on the spectrum, help is often hard to find – we spoke to one young patient whose recovery has taken more than 10 months.

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37 thoughts on “Long Covid: Teen on 10 month journey to recovery”
  1. That's really interesting, as autism is linked to hypermobile ehlers danlos syndrome and hypermobile spectrum disorder and hEDS and HSD are linked to the development of postural orthostatic tachycardia syndrome (POTS). POTS is now more common due to the pandemic and this causes increased heart rate, low BP, dizziness etc.

  2. As we find out more about this disease, we realise that our lifestyles are a death sentence for any one coping with such debilitating symptoms. Poor girl. Being Born into the wrong time is her only mistake. We must create a more Scientific Society so we can gain some vestige of humanity back.

  3. Some long covid is very like ME/CFS. A Fact not mentioned here, which is unfortunate. Starting from scratch with long covid as if nothing like it exists, is frankly crazy and is an example of the stigma and prejudice to ME in the medical profession & media . Pre Covid, ME/CFS was the primary cause of absence from school in kids. I got ME/CFS age 16. The neglect of Pediatric ME/CFS has been a long-term issue.

    ME/CFS shares many long covid symptoms, including debilitating fatigue, cognitive dysfunction, dysautonomia and pain, & is also associated with a viral trigger. ME/CFS is a serious, chronic, complex, systemic disease that often can profoundly affect the lives of patients.” Institute of medicine 2015.

    Unfortunately ME/CFS has been disbelieved, mistreated, neglected and under funded. This means Long Covid has inherited a medical set up where disbelief and hostility were rife and where the neglect around research – leaving 75% of the adults with ME unable to work – means there are no actual treatments other than hoping people just improve with pacing etc.

    Fortunately for pwLC, they are getting much more belief and more specific early stages management than those with ME/CFS who were just told to go away and exercise leaving many seriously disabled. This is going to reduce the numbers left with disabling chronic illness from this Covid infection. 270 000 in the UK (10% children & teens) have chronic ME/CFS in the UK with no treatment options, 25% are so ill as to be house or bed bounds and very sick. “

  4. Covid or the vax only time will tell upto now the vax is looking more guilty than covid for all the problems im not vaxed and not had covid maybe it's because I went outside more than I was stuck inside, i tested everyday and still do due to having old people around me, media lied governments lied, schools lied police lied, why should we believe a word they say.

  5. If, for the sake of argument, we say long covid exists, how would one distinguish somebody suffering from long covid from somebody who was a malingerer?

  6. Are the symptoms in adults taken seriously? I've had a very weird tremor/neurological issue since around 2021, but all doctors have dismissed it so far. Where to go? I have no idea. So I don't think this is a teen-specific problem

  7. The complications that will arise from having COVID will overwhelm our health systems in the decade to come… western government's are failing to get a grip on this reality… there's a reason why the CCPs going hard with lockdowns is because thay know what the long-term effects will be… after all it's their bioweapon!!.😡💕🇺🇸🇺🇦

  8. I remember talking with my doctor early last year, I was having difficulty breathing walking more than 5 meters, I felt extremely heavy all the time, especially sitting or laying down, and I had extreme vertigo doing any task. He laughed at me and offered anxiety medication.

    I had experienced the worst flu 12 months before that almost killed me. I was petrified of hospitals due to the early pandemic and avoided all testing. Here I am with issues later, but I'm not even at 70% of where I was.

    It was interesting to hear that the Daughter was having flare ups of this issues when having a illness. I too experience flare ups and can make me bed bound for a week. Luckily I have a great partner and 2 teens looking out for me.

    These issues are widespread and unresolved. To hear that children are just as likely to get long covid is frightening as they are pushing ahead with schools despite outbreaks.

    Where will we be in 5 years, or 10 with more and more affected. Thanks for reading and have a lovely day.

  9. ATTENTION! How I got better
    I was struggeling with long covid for so long. What I did to get better was 30 minutes in the sauna then 15 minute cold shower then back into the sauna for 15 minutes quick rinse in cold shower. Please if you are struggling please try this. The ymca usually has saunas. I explore you to spread this I don't know if it's causation or correlation but it helped me

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